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About Us

Our Focus Is Diagnosis

 

Because we understand how much one answer
can change everything.

Our Story

Patient-Owned. Guided by Experts.

EDS Connective was built from lived experience and shaped alongside experts in connective tissue disorders. Our focus is diagnosis for Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) - making the path clearer, faster, and more efficient so you can finally get answers.

We bring together what you already know in your body with structured, expert-led clinical evaluation—because both perspectives matter.

"

Getting a hEDS diagnosis changed everything for me. It gave me validation, community, and a path to feeling better. But it took far too long and was far more difficult than it should have been. I don't want my family — or anyone else — to go through the same. I built this so others can get answers sooner, struggle less, and so we can reinvest in research to find better treatments and a cure.

 
Founder, EDS Connective
Your Reality

It Shouldn't Have to Be Like This

0
Years on Average to Diagnosis

The average time to receive an hEDS diagnosis. Over two decades of searching.

Source: Daylor et al., J Clin Med (2025)

$0K
Spent Out of Pocket per Year

The median out-of-pocket cost for EDS patients in the U.S. Even for those with insurance.

Source: Schubart et al., Mayo Clin Proc (2024)

0%
Dismissed as "Making It Up"

Nearly 9 in 10 patients were told they were making up their EDS symptoms.

Source: Lee & Chopra, Children (2025)

The path to diagnosis is often long, expensive, and dismissive.

 

We're changing that.

EDS Connective provides accurate, accessible, and affordable diagnostic evaluation for hEDS and HSD — because diagnosis is the first step toward understanding your health, better care, and finally being taken seriously.

Learn how we do it →
"

Diagnosis is the critical first step in a journey toward improved quality of life.

 
The First Step Forward
Diagnosis Matters

You Deserve to Understand Your Health

You deserve to be taken seriously and the opportunity to improve your quality of life. A diagnosis can mean:

✓

Access to informed care

✓

Safer treatment decisions

✓

Documentation for support and accommodations

✓

Validation after years of doubt

✓

A clearer path forward

There may not be a cure, but there are many ways to better support your body, reduce symptoms, and improve your quality of life once you have a diagnosis as a starting point.

It's not just a label. It's a turning point.

Our Role

A Valuable Tool for You and Your Care Team

We focus specifically on diagnostic evaluation for hEDS and HSD. We also screen for other EDS subtypes and connective tissue disorders to recommend genetic testing where indicated.

We don't replace your care team. We give them the clarity they need to support you with confidence.

Why Diagnosis Is So Hard to Get

 

Fragmented healthcare system

 

Siloed specialists

 

Complex, multi-system symptoms

 

Little to no training in medical school

 

No blood or genetic test for hEDS or HSD

 

Rapidly evolving research

 

Insurance barriers

 

Limited appointment time

 

Long waitlists

The Gap

Most primary care providers want to help. But without specialized training and enough time for a comprehensive evaluation, even great doctors may miss or delay diagnosis.

Our Role

We handle the critical first step: diagnostic evaluation. So you can move forward with:

 

Answers

 

Documentation

 

A foundation your care team can build on

Our Providers

Expertly Trained Doctors Who Believe You

 

ECHO-Trained by the Ehlers-Danlos Society

Your evaluation is completed by providers ECHO-trained by the Ehlers-Danlos Society, the world's leading organization for EDS research and advocacy. Official diagnostic guidelines. No guessing.

 

Board-Certified MDs and DOs, Licensed in All 50 States

Your case is reviewed by board-certified MDs and DOs who understand the complexity of diagnosing hypermobility and connective tissue disorders.

What This Means for You

✓

Providers who believe you from day one — no more explaining, no more being dismissed

✓

Clear documentation aligned with current diagnostic criteria to support accommodations and specialist visits

✓

A detailed report and care plan sent to you and your primary care team

✓

Ongoing education on the latest research and best practices in hEDS and HSD care

✓

Screening for red flags that may indicate other EDS types or connective tissue disorders requiring genetic testing, and clear guidance on next steps if we see them

Our Approach

Accurate. Accessible. Affordable.

When living with the exhausting symptoms of hEDS or HSD, it shouldn't take decades to get the most critical answer: a diagnosis. We've created a new pathway. 

We focus on doing one thing well: helping you get answers.

Accurate

Grounded in established diagnostic criteria and guided by clinical expertise. You can trust the answer you receive.

Accessible

Removing many of the major barriers to care. No referral needed, fully online, available in all 50 states, and drastically faster than the traditional path to diagnosis.

Affordable

Transparent pricing, flexible payment options, and a financial aid program built to reach more people who need answers.

Our Values

What We Believe

We believe you.

Your symptoms, concerns, and experiences are real, even if they've been dismissed.

We believe in you.

There may not be a cure, but there are many ways you can help yourself feel better — with the right diagnosis as your starting point.

We believe diagnosis matters.

You deserve validation, clarity, and documentation as the foundation for everything that comes next.

We believe in a better future.

We are committed to reinvesting in research, education, and initiatives that move us closer to better treatments, and ultimately, a cure.

How We Give Back

Built to Reinvest in the Community

A meaningful portion of every evaluation goes back to the people and organizations working hardest to advance EDS research and make diagnosis accessible to everyone who needs it.

20%
Revenue Donated

of our revenue donated to the Ehlers-Danlos Society to support critical research, education, and advocacy for the global EDS community.

5%
Financial Aid Fund

of every evaluation funds our financial aid program, making diagnosis accessible to those who need it most, regardless of financial circumstances.

Diamond Sponsor — Ehlers-Danlos Society

We're proud to be the exclusive Diamond Sponsor of the Ehlers-Danlos Society, the global leader in EDS research, education, and patient support. Our sponsorship funds provider training, research initiatives, and community advocacy.

The Ehlers-Danlos Society Diamond Sponsor
Medical Advisory Board

Guided by the Best in the Field

EDS Connective is supported by a medical advisory board of clinicians across specialties who are experienced in Ehlers-Danlos Syndromes, hypermobility, connective tissue disorders, genetics, and telemedicine.

Their guidance helps ensure our approach is clinically informed, aligned with current diagnostic criteria, and built to support both patients and providers.

How They Support Our Work

✓

Provider training and evaluation framework

✓

Clinical standards and methodology

✓

Educational content development

✓

Ongoing improvements as research evolves

Meet Our Advisory Board →

We Believe You. We Believe in You.

Validation for your reality. Support for your journey. Empowerment for your future. If you've been searching for answers, this is your next step.

You deserve clarity. You deserve to be taken seriously. And you don't have to do this alone.

Still have questions? Read our FAQ →