Your Questions, Answered.

EDS Connective is a virtual health platform that connects people with doctors who are expertly trained in the diagnosis of hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD). We exist because most people wait over 20 years for an hEDS diagnosis — not because they're "too complex" or because diagnosis isn't important, but because they lack access to qualified care. We're changing that. Our provider network is made up of independent, board-certified MDs and DOs, ECHO-trained by the Ehlers-Danlos Society. Evaluations are based on the official diagnostic criteria. 100% online. No referrals needed. Available in all 50 states and Washington D.C.

The wait is nearly over. We launch in Summer 2026. Join our waitlist to get early access.

We're available across the United States of America, in all 50 states and Washington D.C. Patients must be physically located in a licensed state or D.C. at the time of their evaluation and will be asked to confirm their state of residence. Visits are completed 100% online, asynchronously, so no travel is required and no appointments are necessary.

Yes, patients must be physically located in the United States, in one of our licensed states or Washington D.C., at the time of their evaluation.

No referral needed. You can come directly to us.

Our evaluation is currently available for individuals 18 years of age and older. We'll share updates if we expand to pediatric services in the future.

Yes. Your evaluation is reviewed by independent, board-certified MDs and DOs. Our providers undergo comprehensive training in EDS and hypermobility disorders developed in collaboration with expert advisors at the Ehlers-Danlos Society. This includes ongoing learning through an exclusive EDS ECHO program centered on case-based collaboration, expert guidance, and shared best practices. These are real clinicians who understand the full complexity of connective tissue disorders and believe you from day one. EDS Connective is also founded, owned, and operated by someone with hEDS, because we believe care built from lived experience makes a difference.

Our providers undergo comprehensive training in EDS and hypermobility disorders developed in collaboration with expert advisors at the Ehlers-Danlos Society. This includes ongoing learning through an exclusive EDS ECHO program centered on case-based collaboration and shared best practices. This program teaches our providers how to diagnose hEDS and HSD accurately, recognize multi-systemic symptoms and comorbidities, apply the official diagnostic criteria point-by-point, and know when to refer for genetic testing or specialist care. Most providers never receive this level of training. Ours learn from some of the most knowledgeable experts in the world, and share what they learn from their patients with one another to advance standards of care for all. That's the difference.

Yes. We take your privacy seriously and your health information is protected. For more information on how we handle your data, please review our Privacy Policy.

We believe that your lived experience is the most important evidence. You'll complete a comprehensive intake questionnaire and assessment covering your symptoms, medical history, and hypermobility — everything needed for an accurate determination. You can do the intake at your own pace, no appointment needed, no waiting rooms, no doctor's office anxiety. Your doctor will review everything thoroughly, asking questions where further clarification is required. All communciations between you and the doctor are asynchronous, via secure messaging and/or video. About 3-5 days after intake is submitted, you'll receive your official diagnostic results, a detailed clinical report for you and your primary care team, educational resources, and recommended next steps.

The intake questionnaire and assessment takes approximately 1 hour to complete, though it can be done entirely at your own pace. We only ask that it is submitted within 30 days of purchase. After submission, our providers review your case and you'll receive your results in 3-5 days.

This is an important question. In a perfect world, everyone would have access to an accurate and affordable in-person evaluation by a qualified provider. But we all know how far that is from reality for most. We exist to fill that gap. With the guidance of the world’s leading clinicians and organizations in the field and advanced technology behind the scenes, we’re building the best platform we possibly can within the inherent limitations of virtual care. After your evaluation, we recommend following up with your primary care team to review your results in person and address anything that needs hands-on attention.

We specialize in hEDS and HSD evaluation. We also screen for red flags that may indicate other subtypes of EDS or connective tissue disorders may be present. If we see them, we'll provide a referral for medical-grade genetic testing and counseling.

We screen for signs that may indicate other EDS subtypes or connective tissue disorders that require genetic confirmation. If we identify them, we can provide a referral for medical grade genetic testing and counseling through a third party provider. We do not conduct genetic testing directly, but we require a full evaluation before providing genetic testing referrals to ensure we understand your complete clinical picture. Your clinical report will include specific details on what was identified and whether genetic testing is recommended.

We require a full evaluation in order to understand the complete spectrum of your condition and to determine when genetic testing is appropriate. There is not a separate product for people who only want genetic testing referrals. If you've been previously diagnosed with hEDS or HSD, our evaluation can provide a second opinion on your diagnosis and refer you for genetic testing where indicated or desired. This ensures we're considering your full clinical picture, not just isolated symptoms.

POTS, MCAS, and other common comorbidities are on our radar during evaluation. We look for key symptoms and patterns associated with these conditions and flag anything that warrants follow-up. We don't directly diagnose these conditions at this time, but we'll include relevant findings and recommendations in your clinical report so you and your care team have a clear starting point.

A comprehensive hEDS & HSD diagnostic evaluation is $399. We offer flexible payment plans and are HSA/FSA eligible. A limited amount of financial assistance is available. Our commitment is to make evaluation as affordable and accessible as possible, pricing our services significantly lower than most specialty clinics.

We're currently self-pay and do not accept insurance, including Medicaid or Medicare. Operating outside of insurance helps us avoid pre-authorizations and coverage restrictions that can delay care. We keep pricing as accessible as possible — significantly lower than many traditional specialty evaluations — and offer flexible payment options, HSA/FSA use, and financial assistance for those who qualify.

We're proud to be the exclusive Diamond Sponsor of the Ehlers-Danlos Society. 20% of our revenue goes directly to supporting their research, education, and advocacy. Additionally, 5% of every EDS Connective purchase funds our Financial Assistance Program for patients who need it most. We believe in reinvesting in the community we serve. Learn more about how we give back.

Yes. 5% of every EDS Connective purchase funds our Financial Assistance Program, which offers a significant discount on evaluations to a limited number of recipients each month. No proof of financial need is required. We believe you.

To apply, complete our short application at edsconnective.com/financial-assistance. It takes about 10 minutes — no documentation, no income verification, just your story. Applications are reviewed monthly by our team, and selections are made based on your diagnostic journey, what receiving answers would mean for you, and your financial situation. Only recipients are contacted, and you remain in consideration automatically each month until selected or you let us know you no longer need assistance.

If selected, you'll receive an email with a discount code valid for 60 days. If your circumstances change at any point — or you no longer need assistance — just email us at hello@edsconnective.com and we'll update or remove your application, no explanation needed.

After your evaluation is reviewed, you'll receive a detailed clinical report, your diagnostic determination, a personalized care plan, and a provider letter for your primary care team — all accessible in your secure client portal. Results are typically available within 3–5 days following your intake submission.

We don't leave you with just an answer and a door. After your evaluation, you'll receive a detailed clinical report, a personalized care plan, and a provider letter with findings and recommendations for your primary care team. We'll also send you condition-specific educational resources and self-management information to help you take the next steps with confidence.

Our focus is diagnosis. After your evaluation, we'll provide guidance on next steps and resources for ongoing care, but we don't replace your primary care team or provide ongoing care management.

We'll provide next-step guidance regardless of the outcome. Not meeting hEDS or HSD criteria doesn't mean your symptoms aren't real, and you deserve answers and appropriate care.

Our primary focus is diagnostic evaluation for those who are undiagnosed. If you already have an hEDS or HSD diagnosis and need genetic testing referrals, we require a full evaluation to understand the complete spectrum of your condition and determine when genetic testing is appropriate. Our evaluation can provide a second opinion on your diagnosis and refer you for genetic testing where indicated or desired. If your existing diagnosis was given informally, feels uncertain, or you need proper clinical documentation — for insurance, accommodations, disability purposes, or to support your care team — our evaluation and provider letter can provide that formal foundation.

We respect that perspectives can vary. For many patients, diagnosis provides clarity, validation, documentation for accommodations, and direction for care — even when treatment options are supportive rather than curative. Having an accurate diagnosis can help guide management decisions and monitoring over time. It also matters for safety: people with hEDS respond differently to certain medications, anesthesia, and procedures. Without a diagnosis on record, providers may make decisions that carry real risk. A diagnosis isn't just a label. For many patients, it's protection.

There are two reasons you might want a re-evaluation: your symptoms, medical history, or family history have changed significantly since your original evaluation, or you were evaluated under the 2017 diagnostic criteria and want to be re-evaluated once we've integrated the updated 2026 criteria — expected to be released in December 2026. In either case, a re-evaluation is available. Pricing depends on when you were originally evaluated. If your first evaluation was in 2026, re-evaluations requested within one year are available at $98 — our early adopter rate for patients who trusted us from the start. If your first evaluation is in 2027 or later, re-evaluations within one year of your original evaluation are $198. After the one-year window, re-evaluations are available at the standard rate of $399. To request a re-evaluation, contact us at hello@edsconnective.com.

Don't wait. The updated 2026 diagnostic criteria are expected to be released in December 2026, and we're committed to incorporating them into our platform — but that will take time after they're released. Getting evaluated now under the 2017 criteria means you'll have answers, documentation, and a clinical record in hand rather than waiting months for something that may not be available immediately. And if you're evaluated in 2026 and want to be re-evaluated under the 2026 criteria once we've integrated them, your re-evaluation is available at $98 within one year of your original evaluation — a significant savings off the standard rate. Getting evaluated now is the faster path to answers, and it protects your re-evaluation pricing.

We understand that receiving results that don't match what you expected can be difficult, especially after a long and exhausting diagnostic journey. Because your evaluation is reviewed by a licensed clinician, all purchases are final and we're unable to offer refunds once a purchase has been made — including cases where a diagnosis of hEDS or HSD is not made. Our clinicians follow the established diagnostic criteria and provide their honest clinical assessment. If you have a specific concern about your evaluation, we want to hear from you. Please reach out at hello@edsconnective.com before contacting your bank or credit card provider. If your symptoms or history have changed since your evaluation, a re-evaluation may be the right next step.