Our Focus Is Diagnosis

Patient-Owned. Guided by Experts.

EDS Connective was built from lived experience and shaped alongside experts in connective tissue disorders. Our focus is increasing access to diagnosis for Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) - making the path clearer, faster, and more efficient so you can finally get answers.

We bring together what you already know in your body and the missing piece you still need: access to an expert diagnostic evaluation.

The average time to receive an hEDS diagnosis. Over two decades of searching.

Source: Daylor et al., J Clin Med (2025)

The median out-of-pocket cost for EDS patients in the U.S. Even for those with insurance.

Source: Schubart et al., Mayo Clin Proc (2024)

Nearly 9 in 10 patients were told they were making up their EDS symptoms.

Source: Lee & Chopra, Children (2025)

Access to informed care

Safer treatment decisions

Documentation for support and accommodations

Validation after years of doubt

A clearer path forward

Why Diagnostic Evaluation Is So Hard to Get

Trained by the Ehlers-Danlos Society

Your evaluation is completed by providers who have completed training developed in collaboration with the Ehlers-Danlos Society, the world's leading organization for EDS research and advocacy, and will complete ongoing education through their award-winning ECHO program.

Board-Certified MDs and DOs, Licensed in All 50 States

Your case is reviewed by board-certified physicians who understand the complexity of diagnosing hypermobility and connective tissue disorders, and who are licensed to treat patients in all 50 US states and D.C.

Grounded in established diagnostic criteria and guided by clinical experience. Physicians with expert training and EDS ECHO ongoing education.

Removing many of the major barriers to care. No referral needed, no travel, no appointment times, fully online, available in all 50 states and D.C.

Transparent pricing, flexible payment options, may be FSA/HSA reimbursable, and a financial aid program to bring diagnostic evaluation to more people who need it.

We believe you.

Your symptoms, concerns, and experiences are real, even if they've been dismissed.

We believe in you.

There may not be a cure, but there are many ways to improve your quality of life— with the right diagnosis as your starting point.

We believe diagnosis matters.

You deserve validation, clarity, protection from harm, and official medical documentation as the foundation for everything that comes next.

We believe in a better future.

We are committed to reinvesting in research, education, and initiatives that move us closer to better treatments, and ultimately, a cure.

of our expected 2025 - 2028 revenue is donated to the Ehlers-Danlos Society to support critical research, education, and advocacy for the global EDS community.

of every evaluation funds our financial aid program, making diagnosis accessible to those who need it most, regardless of financial circumstances.

Provider training and evaluation framework

Clinical standards and methodology

Educational content development

Ongoing improvements as research evolves